Write a Comment
8 Comments
I am'starting with the new medicine for Hep C on Wednesday 11/5/2014. Im a little nervous about the side affects???? Any feedback??? Thanks, Bob
Thanks for holding out hope to others by sharing your story. Keep us posted.
I started the Solvaldi/Olysio combination tx on 4/13. Had my first labs last Monday, will see my doc on 5/1. I've had HepC 1a for 45 yrs. This is my first tx. I was at 4th to end stage liver failure when I found the specialist two hrs. from where I live. It was like a miracle. The meds were approved in about two weeks via my (Medicaid) Medicare part D plan, HealthSpring, my co-pay is $3.60 a month. I went bankrupt paying for my limited healthcare before age 65, and was beginning to feel a lack of hope. I've waited for these drugs for years, not wanting to poison my body with the old tx. Wasn't sure I'd make it until the old predicted 2015 release date of the new drugs. Side effects are minimal so far. More fatigued, than before tx. That seems to be it so far. Hoping more can benefit from this tx. It has given me hope again.
Your doctor - Medicare should cover interferon-free. The really great drugs (sofosbuvir/ledipasvir) are expected to be out early October. I am writing a blog on this for next week, so check back, please, and hold fast to life.
who can I write to help expedite these new drugs and reduce costs? I am 65 and my first 2 treatments with Pegitron, ribo and victrelis failed. The longer one waits the less the chance for success. Side effects of the disease are showing up daily, curved nails, veins on stomach, spleenomegaly - spleen is larger than my liver, varicose veins, wrinkles on face, etc. I do not think I will have a successful third attempt if I have to wait till 2015, me and a lot of other people. There are not enough livers for transplants so forget that.
Thank you for paying it forward - sharing your experiences brings hope, and who knows how many people are lifted out of despair because you took the time to write. Thank you.
I had a transplant went thru rejection and then theyapproved solvadi and olysio i took that with very minimal side affects almost not worth mentioning for 3 months waiting for the final blood work i believe im cured of hep c find out in july wether im cured for good or not Lahey Doctors and nurses gave another chance at life i came so very close to death they where the Doctors were surprised I made it so at 61 Ive given another chance at life i pray i justify it and as they say pay it forward
Lucinda K. Porter, RN
Hi Bob, You didn't say what meds you were going to take, so I can't answer that question. May I suggest you join the Hep Forum http://forums.hepmag.com/ - Lots of great info there, from people who have a lots of experience to share. Good luck with your treatment.
November 2, 2014