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November 10, 2014- Day 11

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9 Comments

Amy

Hi, I have been on Harvoni for 9 weeks. I feel good and my viral counts are amazing. I am on the 24 week program, for I do have cirrhosis. Since I started I have been extremely itchy and insomnia is very harsh. 3 weeks ago, I didn't sleep a wink for 6 nights. My Doctor put me on a very low dose of Ambien and it isn't working, as I am up right now. I have tried every over the counter sleep aid available. Don't see the doctor for another 2 weeks. Tonight is Friday and I can't even call until Monday. Does anyone know if I can take Melatonin 5 mg. and the Ambien 5 mg. togehter? Thank you....just need to sleep. Desperate.

February 21, 2015

Mary

I was put on a program that made my co-pay go from $4454 a Rx, to just $5.00!!! Praise God! today is my second dose and felt like the flu was starting. My Insurance is Coventry, but they handed me over to AENTNA specialty Pharmacy. Call the Harvoni phone# and they can steer you in the right direction. Good Luck!

December 19, 2014

May Hollenback

Cathie, I have been taking a low dose of Xanax, .25mg. Also, I am fortunate enough to live in a state where medicinal marijuana is legal, so I use that too. That actually gives me the greatest relief from the fatigue headaches and for sleep. I've used it since I was diagnosed with cancer and don't take any pain pills at all, plus my mood and appetite are improved. CBD tincture has no THC so no stoned effect and it doesn't show up on drug screens. I've been told you can buy it online. My son has been free of seizures for a year since using it.

November 12, 2014

Kyle Jacobs

Cathi, Sounds like you're on the same 12-week treatment plan as me and you're well on your way with only 38 days remaining. Congratulations! I also experienced some sleep issues at first. I changed the time that I was taking Harvoni to bedtime just for that reason and it worked for me. Insomnia is one of the listed side effects. If you find something that works for sleeping, let the readers know by sharing. Keep me updated on how things go over the next five weeks or so. Kyle Jacobs

November 11, 2014

Kyle Jacobs

Thank you for your comment on my blog. I highly recommend the Hep Forums (http://forums.hepmag.com) for asking questions around living with and treating hepatitis C including insurance companies and their policies on paying for Harvoni. You will find many folks willing to share their knowledge and experience.

November 11, 2014

C

I would like all who comment to name their insurance or other means of financing Harvoni. Thank you.

November 11, 2014

Cathi

I'm on day 18 of Harvoni. My only issue is I CAN'T SLEEP!!! I'll have a day or two of sleep, then back to no sleep. So tired of being tired. I have Ambien at home but it didn't seem to help, nor did melatonin. I can be so relaxed, so sleep, so ready to sleep but I stay awake. When I do fall asleep I'm up in an hour and then it goes on like that all night. Lot of weird dreams too. No other issues with it though. Don't get me wrong. I am SO grateful for this medicine. Been waiting 25 years for help. It's only hard because I work full time and get up at 4:20 so it's to be early for me. No sleeping in because I was up half the night. Oh well, only 38 days to go...woo hoo!

November 11, 2014

Kyle Jacobs

May, Good morning and happy Tuesday! I initially experienced fatigue and an odd and perhaps slightly dizzy feeling when taking it during the day and then just the opposite (insomnia) when I took it at night. However, the insomnia went away after three or four days of taking the pill at bedtime and I am no longer having any issues with sleeping. I feel pretty good actually. I am definitely going to stick with taking the pill as I go to bed but that of course is what works for me personally. When you said it was kicking your butt, were you talking about feeling fatigued? Did taking it at bedtime help last night?

November 11, 2014

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