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Wow....Thank you for sharing your feelings here, it validates my feelings also. I'm a persistent "Non-Responder" 4 times on weekly peg-intron 1 time daily injections + I just finished 6 month of Harvoni....strike 6. I am aware of the fact that hep-c has long ago taken control of my life as I am constantly trying to navigate life through the fog and hindrance of my hep-c. + I have made lots of life/relationship decisions based a lot on which would put me in the best position to make it through another round of therapy. I have had the hep-c from 18-20 and Im 58 now, so thats 38 years and pretty much my entire life. So I can relate to, "What am I going to do, think and feel when my constant companion is no longer on my back"? Like I have so many routines and things that are only there because of my having hp-c, so whats it going to be like to brake it's chains and escape from it's prison? No longer feel the Leper? I'm certainly looking forward to this problem and am glad that you have pointed out this dynamic so I can sorta prepare for it and not just have it dumped on me. So, again, Thank You :))
That's it! I'm reinventing myself into someone 30 years younger. With a better liver! ;)
We constantly reinvent and redefine ourselves, Gracie, and I doubt HCV will be any different to other things which have come and gone. Great blog. Thanks :)
A really good description of how I (and many others) feel. Basically, the question is, "Who am I without hep C? Who will I be?"
Ben Linkous
My recent HCV count is 7,800,000, believe that? If my HCV count continues to rise what effect does it have? DR's tell me this count is higher than they have seen. What can I expect? I've taken 2 treatments and both showed "undetected" for a short while, then comes back. How high can HCV count go and what symptoms should I expect?
September 23, 2016 • Edgewater, FL 32132