I received this wonderful email below from a lady I helped to get generic Sofosbuvir and Daclatasvir for in December last year.
She was actually the first person in Greece who I helped to get generic Hep C medicines for.
I called this post good news and bad news because it holds the wonderful news that she is SVR 24 but also it reaffirms this arrogant opposition to generic treatment that so many doctors have.
Here is a woman who is desparate for treatment. Who wisely refuses the Interferon and Ribavirin treatment, who takes control of her health, cures herself and is treated with scorn by her doctor.
There is a whole lot of evidence now published showing that generic DAAs are just as effective as the expensive brand versions. Every day I get several emails from people writing to tell me that they are SVR 12 or SVR 24.
Really why do doctors have this attitude? I thought it was all about helping the patient achieve wellness?
Anyway despite her doctor Sophia is well again and hope you enjoy reading her story
Sent: Tuesday, September 20, 2016 7:13 AM
To: greg jefferys
Subject: Re: Sof Dac
(I have changed this person’s name for privacy reasons)
Hi, it’s Sophia from Greece! I’ve been meaning to write for some time now, but something would always come up!
First of all I began my treatment of Sofosbvuir and Daclatasvir in December just before Christmas and I had my first blood tests done on February 15, which was half way into treatment, which was the earliest I could get to see my doctor.
I didn’t tell her I was taking generic Sofosbuvir and Daclatasvir because she was totally against the idea of taking generics and said they were probably poison that would probably make my Hepatitis worse and lead me to cirrhosis. Instead she wanted to put me on Interferon + Riba and said I had no other options!
So, a couple of weeks after she took the blood I went to see her for my test results and she had someone send me away and told me that she was too busy to see me and she wouldn’t have an opening for an appointment until May!!!!!
I was EXTREMELY FURIOUS!!! I couldn’t get my test results and I would have to wait for another 2 months to get them!!!
I could have gone to a private lab and done the test again, but it was way too expensive and I couldn’t afford it!
So I waited...and waited.... and waited until my appointment came in May! My treatment by the way ended in March and I had NO IDEA what the results were....was I clear? Was I still sick? Was I worse? Of course I would think of the worse case scenario....actually I became so depressed, I thought I was dying!!!!
When finally my appointment came up, I rushed in the doctor’s room and asked her for my test results and she looked at me with the weirdest look and asked me if I took any kind of treatment.....
But I said no (because she was so against generics), and I asked “Why?”
Then she answered “Because the virus was non detected!!!”
I was beside myself with joy but I kept it concealed.
I asked “ Are you sure????”
She shrugged her shoulders and said it was probably a mistake and that I should have the test done again....
But this time I told her Ι wanted to take the test at a private lab so I can get my results ASAP so she referred me to a private lab at half price.....
What really made me angry was the fact that she knew the results and she left me in the dark worrying for 3 WHOLE MONTHS!!!!! A simple phone call would have saved me so much suffering!!!
Well I took the test again in June at the private lab and it was still non detectable!!!! I’m soooo happy, I still can’t believe it!!!!
But I still want to take it one more time in a month or two, just to make sure (7-8 months post to treatment).
Other than that my arthritis stabilized, it never went away but at least it didn’t get worse and I don’t have to take prednisone anymore!
(I guess the damage to my immune system after 30 years of fighting the virus was too much)
I will keep you posted on my next test result.....I hope I’m not taking too much of your time.
I just think what you are doing for everyone is admirable and in my opinion you are the greatest person I have ever met and I am very lucky to have found you!!! Thank you for giving me my life back!!!!
Wishing you all the best for you and your family,